The January 7, 1998 edition of PULSE, The Medical Student Section of JAMA was dedicated to a series of articles on “The Americans with Disabilities Act and Afterwards: Disabilities in Medical Education and Practice”. One of the most interesting items in the entire section was the statistic that 8.8% of all college freshman report having a disability compared to only 0.2% of medical school graduates (1, p. 79). Covering topics from mental health to deafness, many of the articles are written from the first-person point of view of the disabled medical student, and while over ten years old is still an important read for any academic health sciences librarian.
(1) Reichgott MJ. The disabled student as undifferentiated graduate: a medical school challenge. JAMA 1998 Jan 7;279(1):79. doi:10.1001/jama.279.1.79
Teacher Jill Dunaway Demonstrates The Bookshare Library
Bookshare is an online catalog of digital books for people with visual disabilities, and is free to any student in the United States with a qualifying disability. Additional information on who can qualify for membership and proof of disability requirements can be found at Bookshare’s website at: http://www.bookshare.org/_/membership/qualifications.
National and regional statistics for your coverage area are imperative when developing an inclusive service plan for those with special needs in your library. Disability statistics from the 2006 American Community Survey are available online from the U.S. Census Bureau at http://www.census.gov/hhes/www/disability/2006acs.html. Customizable tables can be created from the data with regards to:
- school enrollment
- educational attainment
- employment status
- poverty status
- median earnings
Disabilities are grouped into the following categories:
Additional disability data includes: disability subject table, select economic characteristics for the civilian noninstitutionalized population by disability status, and ranking tables by age group: 5-20 years, 21-64, and 65+.
Though the majority of articles on disabilities featured in UpToDate require paid subscription access, there are three that fall within the free patient information division and would be ideal information prescriptions for non-biomedical staff:
A needs assessment survey published in 2005 details the first phase in a partnership with the School of Library and Information Studies at Texas Woman’s University, Houston Academy of Medicine-Texas Medical Center (HAM-TMC) Library, and Family to Family Network (F2FN). F2F provides services and support to families with special needs children in the Houston area. The needs assessment survey was the first phase of a joint effort to increase health information access to Texas families of special needs children. Both the survey methods and questions are detailed in the article, and would be an excellent template for any biomedical library interested in partnering with local resources to increase outreach and education to any special needs population.
Huber JT, Dietrich JD, Cugini E, Burke S. F2F connection: a community health information needs assessment of Texas families who have children with chronic illnesses and/or disabilities and their care providers. J Med Libr Assoc 2005 Apr;93(2):278-281. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1082946/
This is a very entertaining and informative personal narrative of Dr. Ian Grant-Whyte and his experiences as a physician with dyslexia. Dr. Grant-Whyte graduated from Cambridge Medical School unable to read, and finally learned to read at 41. He cites attending a speed reading course as the key, having been introduced to the concept of using his finger as a pacer. Born in South Africa, he ends the interview with a Zulu lullabye. More information about Dr. Ian Grant-Whyte and his memoir can be found on his website at: http://www.dyslexicdoc.com/.
(Disclaimer: there are two words bleeped at the beginning of the interview. Potentially NSFW or around children.)
A 2009 study on the effects of education intervention on health information literacy in low socioeconomic senior citizens explored how information literacy training could improve their online searching skills. The study explained that physical, hearing, and visual impairments, which often increase with age, were some of the barriers to many senior citizens attempting online searches for health information. (1, p. 12)
The NIH SeniorHealth web site (http://nihseniorhealth.gov/) is a prime example of web accessibility. Though the website has colorful images, they are presented in a very uncluttered manner. Not only can the text be magnified, but contrast can also be set to create a black background with yellow writing. Speech can also be turned on to have all text read aloud within the browser. Information is arranged in an easy-to-navigate manner and all text is an easy-to-read level of comprehension.
(1) Chu A, Huber J, Mastel-Smith B, Cesario S. Partnering with Seniors for Better Health: computer use and Internet health information retrieval among older adults in a low socioeconomic community. J Med Libr Assoc 2009 Jan;97(1):12-20. doi: 10.3163/1536-5050.97.1.003